Laughing, Weeping, Living

Life happens. You laugh about it or cry about it, sometimes both.

7 Quick Takes: November 8

on November 8, 2013

Linking up with Jen and the gang at Conversion Diary. I missed last week, but I’m happy to be back!

1. So, it’s really nice having Agnes at home and all, but I did have a lot more time to do stuff when she was in the hospital. Please don’t judge me, but I did really enjoy having time to blog in the evening after Stephen went to bed, or to sleep in past 7 a.m. Plus it’s super stressful having both kids at home. I know it’s super stressful having more than one kid as it is, but with Agnes, I’m pretty much chained to her bedside since she’s connected to two to four machines at any given time and her cords only reach so far. I spent most of my day today sitting in the chair near her bed, holding Agnes in one hand, entertaining Stephen with books and coloring in my lap, and wiping his runny nose with my free hand. It wasn’t the worst day I’ve had, but it kind of sucked.

2. At least there were some funny moments. For example, Agnes’ pulse-ox monitor stopped reading for some unknown reason and it was making that horrible “beep beep-beep” sound. I couldn’t silence the alarm because I had just gotten Agnes settled with me in the chair and her feeding pump running, so I asked Stephen to push the “yellow button on the monitor.” He did it, and the cursed beeping was silenced. That’s my boy! He likes Agnes’ stuff: her pusle-ox monitor, oxygen tank, suction, cords, her trach, all of it. He knows what all the stuff is and what it’s all called. Smarty pants.

100_18743. Also I took this picture last week. Apparently this is the correct way to eat pizza.  Stephen eats much of his food in a similar manner. He takes a few bites out of eat sandwich half before going back to finish. He eats half of each cracker first. I don’t think he’s protecting his plate from mommy and daddy thieves since we take his pieces often even if he has partially eaten them. I think he just likes to do it this way.

4. While Agnes was in the hospital she outgrew some of her cute newborn size clothes. I was sad, until I realized that they are the perfect size to cover those “fluidized positioners” we got when Agnes was discharged. I guess they can only be used for one patient, so we got to bring them all home. I think the clothes are way cuter than the thin hospital covers the positioners came with.

100_1889

5. We have had a good response to our fundraising website. We are still in need of a van to transport Agnes around. Our little car is tight in the backseat with a toddler car seat, Agnes’ car seat, and the adult who rides with Agnes. It’s ideal to have an adult caregiver riding to watch Agnes, just in case she gets into trouble. The monitor is often unreliable in the car; I need to be able to see her color because she gets so worked up. The hard part about riding in the backseat is, I can’t even buckle my seatbelt in the back because there is no way I can reach the buckle. And my hips are wedged between Agnes’ seat and the door. God forbid I actually need to do something in an emergency like suction her trach or get in her travel bag for the ambu bag because she is in distress. I can’t really even reach her bag even though we drive with it in the car, in the front seat. There isn’t enough room to drag the bag into the backseat without clobbering Stephen in the face. And even if we got the bag into the backseat, there’s nowhere to put it. If Agnes had an emergency while we were driving, we would have to find somewhere to pull over, stop the car, leap out and go to the front passenger door to get the bag, take the bag to the backseat, get out the supplies that we need, then get to work on Agnes.

So, if you want to make a small gift to help us purchase an adequate used minivan that will afford us the interior space we require, we would be eternally grateful!

100_18876. I have to put this photo on even though it is so dark. Earlier this week, Stephen requested to take a nap. I was so surprised, but I put him in bed thinking he would change his mind and not fall asleep. But he did fall asleep! It was nice; I held Agnes in her chair and lolled around for an hour, recharging. When I went to get Stephen up, he was still fast asleep. I had to sneak a picture, he looked so peaceful and adorable with all his stuffed animals and the blanket up to his chin. He has his platypus which has been his special lovey for just over a year, now. I’m not sure why he picked that of all the stuffed critters, but he did and pretty decisively. Too bad it’s a “retired” Beanie Buddy first generation Patty the Platypus that we have to scour Ebay for to replace. He has two that we rotate–one to wash, one to wear. He also has a monkey that has a removable scented pouch in his tummy that you can microwave for warm, soothing scent. Stephen doesn’t like it warm, though. He just likes to change the monkey’s diaper using his own diapers, which I think is weird and Jeremy thinks is hilarious. Hmph.

7. I heard this song on the radio the other day and I really like it!

Enjoy your weekend!

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