Laughing, Weeping, Living

Life happens. You laugh about it or cry about it, sometimes both.

Busy Week

on October 31, 2013

We brought Agnes home on Monday, and it has been a busy busy week. Agnes had a pediatrician appointment on Tuesday. It was our scheduled 4-month well baby visit. Funny story, the appointment was actually on Monday, but in my mind I thought it was Tuesday so I never rescheduled because with a Monday discharge she would make the appointment easily. So I’m on the way in the car, and I suddenly get that feeling, you know the one. I called Jeremy and asked him to check the calendar. Well, shoot, I was totally going to be on time except now it looks like I am actually 24 hours late. Jeremy called and they were gracious enough to let me come in anyway, so Agnes had her appointment on Tuesday.

Then on Wednesday Agnes visited Neurosurgery for a shunt check up. It’s working.

Then today Agnes visited Neurology for some sort of follow up. Agnes is delayed, partly because of her lengthy hospital stays, partly because of her chromosome stuff.

In the midst of all this, we’ve been calling to get in-home therapies restarted. We’ve fielded calls from the Social Security office and BCMH. We’ve scheduled home care equipment deliveries. We’ve had visits from home nurses and social workers.

Tomorrow we don’t have to go anywhere, thankfully. That’s fortunate because Agnes hates to ride in the car so much, she gets sweaty and breathes hard, and her color gets really weird and I worry about her. She’s even puked a couple times because of a stressful car trip; but so far today no throwing up. I’m hoping she can settle a bit over the weekend before we move back into the week. Next week we don’t have very many appointments, plus we should start getting more hours of private duty nursing next week. That will be a big help!

Okay, that’s all I have time for today, but I wanted to give a quick update!

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